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Fantastic testimonial

Hi Dawn

I received your fantastic book and I wanted to congratulate you on a remarkable book, full of love and humour and terrific illustrations! I found it both moving and uplifting and I thought the simple way you deal with the subject of Parkinsons most effective and very suitable for young children. I am sure it will be well received in schools and with families and you should be very proud of yourself. My eldest granddaughter is 7 now and in her class they have a little boy with a critical condition requiring the wearing of a suit and mask and his classmates know about his condition and treat him sympathetically. I am going to show your book to my granddaughter’s teacher who I am sure will be interested in it because it is compassionate and sensitive to illnesses.

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The compilation

5 stories in one volume?

“What a lovely book. Thank you for sending it. It moved me a lot” – Anne ( November 2016)

” You are an inspiration to many with your positive, honest acceptance of your condition – you have my admiration, whole heartedly. How proud your dear father would have been of you …
You are blessed with the great Rose strength of character and determination!
How wonderful that you are so keen and interested to help other folk afflicted with this condition.” – Aileen ( November 2016)

“My family have read through your book – … our daughter said it is a “beautiful” thing that you have produced – both she and ….., our son, were moved by your book and the whole presentation.” Aileen ( November 2016)

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Thank you

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Thank you to all of you who have read and enjoyed this compilation Jake and Granny book. Spread the word.There are more and more of us out here. Please share the book with friends and family. Our voices need to be heard. Thank you again.

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How extreme is extreme?

PD Warrior is supposed to be extreme exercise. Power Through is an exercise programme to make you “Power Up”, tensing muscles, straightening up, moving quickly and purposefully, with strong controlled movements.  And boxing? You need quick reactions, strength to withstand the “kickback” from the trainer’s pads, reasonable posture so as not to fall forward whilst sparring, good foot movement “float like a butterfly” ( before you “sting like a bee” , except we won’t be doing any stinging ) and stamina to keep it going for an hour or so. I can do this.

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Tears at its first outing

Oh dear! “Can we talk about it?” had its first public reading last night and there were tears. Not those of the kind and rather embarrassed audience from the Bristol Festival of literature, but mine. Just when you think you’ve got this thing under control …

Thank you to Sian Norris for organising the event and to the other contributors, who shared their own very personal experiences in verse. I loved it.  An email compilation would be wonderful. Sian?

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New views?

Bit worried why “new views” of the website aren’t translating into book purchases. Don’t you like it? Does it cost more than you want to pay? Is it inappropriate for your situation? You can mail me and tell me. I might not agree, but will respond. Thanks.

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Buddy binge ahead of Portland, Oregon

I have a “Buddy” called Melody. Shhh – we are members of  “Secret Group”, by invitation only. Neither of us has been very prolific on the site. I had a mail reminding me. So this morning, I have had a “buddy binge” and it feels so good … partly cathartic, expunging my guilt, no doubt. I have ” liked” and “commented” on lots of events, posts and people. Click, click, click. I spent a good couple of hours, bingeing. There were some fascinating posts, videos, testimonies. And I was humbled. We here in the UK have a bit of a “Monty Python” mind-set. A ready laugh, a cynical remark,  just a little bit of mockery – lighten up. So it was a sobering moment spent reading of a 21 year-old diagnosed with Early Onset Parkinson’s, an 83 year old who has walked the distance from his home town to Portland, covering 12 miles every day for the last two and a half years, as a homage to his wife, who has PD. Partners of 20 years or more, still laughing together, a newly-diagnosed young man, learning to control the volume of his voice and the clarity of his speech, so that he could propose to his beautiful fiancee. I shall be at the “Buddies meet-up”. Looking forward to meeting you, Melody.

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