...

Uncategorized

Posted in: Uncategorized

Volunteer Educator training :-)

Thank you Wendy and co. for today’s introduction to volunteer education. Lively and engaging and definitely something I should like to be doing. Who are we, these “People with Parkinson’s?” What do we look like? What symptoms do we have? What do we need in order to live life to the full? How can we share this with those around us, partners, friends, carers, professionals? Awareness isn’t just for that one week each year in April. Trying to raise awareness on TV – how can we help ourselves? And help others to talk about P.D.?

https://www.madeinbristol.tv/catchup/?c=lifestyle&p=x4ug71&v=x5s09q4

Scroll to 47 minutes – and there it is. Thanks for watching.

Read More »
Posted in: Uncategorized

Have you read the 5 stories?

Thank you for your “views”. Lots of people come on to this page. Please think about buying the book. 5 stories in 1 volume. £1 will go to the Cure Parkinson’s Trust for each copy sold. And children do love the pictures and the bright and humorous illustrations.
My grandson is still in Tanzania so I haven’t been able to share the stories with him yet. He will be home for the summer. I am sure he will notice that I move more slowly than last year. Then we CAN “talk about it”. Just like in the story.

Read More »
Posted in: Uncategorized

Dancing, Nordic Walking, Boxing, Personal Training … and very few drugs :-)

So we danced today at a Ceilidh. Not as fast as those without Parkinson’s, but we were looking good. And Nordic Walking classes are twice a week, technique included, improving stamina, strength, balance, stride length and morale. It’s lovely to walk together. And boxing is great fun but exhausting. A laugh a minute and we are getting better. Sky News came to film us on Friday 12th. Personal Training focuses on what a Person with Parkinson’s needs. What I need is another brain scan. Why am I doing so well 5 years after diagnosis? Is it the exercise? I believe so. Have new neural pathways been made? Yes, I think so. Have cells been renewed? Only a brain scan could show that they have.

Read More »
Posted in: Uncategorized

Parkinson’s Awareness Week is nearly upon us.

From the 10th to the 16th April, we shall be out and about, all across the UK, trying to raise awareness of this condition, which doesn’t just affect the elderly. And if you know anyone who is struggling to talk about it, especially to young children, please send them my way. Try a story. It’s not threatening. It gives you thinking time. It can be gentle. It is richly textured. I haven’t given up. Too much to do and to share. See Facebook dawnmaybooks. Videos of boxing and books. And even babies need books.IMG_0715

Read More »
Posted in: Uncategorized

Book reviewed on Cure Parkinson’s Trust website

Thank you Cure Parkinson’s Trust for this very kind review, which exactly expresses my aims in writing the stories. Good to know the message is coming through loud and clear. We WILL find a cure – hand in hand with the scientists, and with our children and grandchildren rooting for us! In the meantime, let’s make the most of the time we still have. Who knows when that cure will come? Can’t wait!

Read More »
Posted in: Uncategorized

And now a media star – well, nearly!

Local TV station “Made In Bristol” has produced 2 reports, one about our Parkinson’s boxing group and the other about this very book.
See https://www.madeinbristol.tv/player/ on “Catch Up”
First report on “Bristol News” part 1 6pm Friday 6th January after 9 minutes.
Report 2 on “The LowDown” part 1 6.30pm Friday 13th January.
(The Catch Up links are time limited. Enjoy whilst you can) Thanks

Read More »