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Dawn May Books

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Volunteer Educator training :-)

Thank you Wendy and co. for today’s introduction to volunteer education. Lively and engaging and definitely something I should like to be doing. Who are we, these “People with Parkinson’s?” What do we look like? What symptoms do we have? What do we need in order to live life to the full? How can we share this with those around us, partners, friends, carers, professionals? Awareness isn’t just for that one week each year in April. Trying to raise awareness on TV – how can we help ourselves? And help others to talk about P.D.?

https://www.madeinbristol.tv/catchup/?c=lifestyle&p=x4ug71&v=x5s09q4

Scroll to 47 minutes – and there it is. Thanks for watching.

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Posted in: Books, Parkinson's

19 posts from followers and no reply from me – ooo ‘eck

Lowdown – all about the books.

When I get old and losing my hair … well, that hasn’t happened, even though I am now 64. But what HAS happened is that I don’t really have a grasp of this basic technology – my website!
So, this evening, when attempting to “wind up” ( or “wind down” – English is so complicated!!) my “Dawn May Books” company, I took a quick look at the website, just to check on which books were still for sale on it.
And 19 of you popped up – in amongst the ads for Viagra, mineral powder face products, offers to improve sales if I paid out more money than I have – 19 of you saying how the blogs had touched you, were helpful to you, cheered you up and all wishing me luck with my venture.
The most surprising was a lovely mail from Ian Foster, who is now a photographer. I “tried” to teach him French at secondary school 35 years ago, apparently. Oh Ian, send me a photo of yourself. Remind me of my attempts to teach you. If between us we were unsuccessful, I am sure my teaching was just as much to blame as your attempts to learn.
So now, it isn’t French I want to talk about. It’s Parkinson’s. French was always my passion, but this thing is now my life’s work. I’m still keen to spread the word. Once a teacher, always a teacher. Because Parkinson’s affects so many people. We don’t choose to engage with it, any more than we chose to engage with French all those years ago. It just happens to some of us, the unlucky ones.
“It could be you” says the lucky finger, pointing down from the sky on Lottery draw days. Oh yes. It was me. 1 in 500 of us with Parkinson’s. What are the odds of winning the Lottery? Better odds than that? But no point in being bitter about it, is there? I’m carrying the torch, drawing attention to this condition, making sure the world knows and cares.
And especially our children. Children want to understand why Granny is slower and why no-one will talk about it. They want to help. They want to cheer her up, but also to share her story with their friends, their teachers and their families. “Can we talk about it?” asks Jake, finally, because he needs to and of course Granny wants to talk too.
Please get your own copy of the book, read it and pass it on. Share it with your children, your grandchildren, your neighbours, your local school. The more we can talk about it, the better understanding there will be.
And please contact me on dawnmay2002@hotmail.com
I promise to get back to you this time.

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Have you read the 5 stories?

Thank you for your “views”. Lots of people come on to this page. Please think about buying the book. 5 stories in 1 volume. £1 will go to the Cure Parkinson’s Trust for each copy sold. And children do love the pictures and the bright and humorous illustrations.
My grandson is still in Tanzania so I haven’t been able to share the stories with him yet. He will be home for the summer. I am sure he will notice that I move more slowly than last year. Then we CAN “talk about it”. Just like in the story.

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Dancing, Nordic Walking, Boxing, Personal Training … and very few drugs :-)

So we danced today at a Ceilidh. Not as fast as those without Parkinson’s, but we were looking good. And Nordic Walking classes are twice a week, technique included, improving stamina, strength, balance, stride length and morale. It’s lovely to walk together. And boxing is great fun but exhausting. A laugh a minute and we are getting better. Sky News came to film us on Friday 12th. Personal Training focuses on what a Person with Parkinson’s needs. What I need is another brain scan. Why am I doing so well 5 years after diagnosis? Is it the exercise? I believe so. Have new neural pathways been made? Yes, I think so. Have cells been renewed? Only a brain scan could show that they have.

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Parkinson’s Awareness Week is nearly upon us.

From the 10th to the 16th April, we shall be out and about, all across the UK, trying to raise awareness of this condition, which doesn’t just affect the elderly. And if you know anyone who is struggling to talk about it, especially to young children, please send them my way. Try a story. It’s not threatening. It gives you thinking time. It can be gentle. It is richly textured. I haven’t given up. Too much to do and to share. See Facebook dawnmaybooks. Videos of boxing and books. And even babies need books.IMG_0715

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Book reviewed on Cure Parkinson’s Trust website

Thank you Cure Parkinson’s Trust for this very kind review, which exactly expresses my aims in writing the stories. Good to know the message is coming through loud and clear. We WILL find a cure – hand in hand with the scientists, and with our children and grandchildren rooting for us! In the meantime, let’s make the most of the time we still have. Who knows when that cure will come? Can’t wait!

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